The Paediatric Epilepsy Network NSW - Home

The PENNSW website provides information for children and adolescents living with epilepsy and their families, as well as clinicians involved in patient care.

The information for families is designed to complement, not replace, the relationship between a patient and his/her own physician. Patients and parents/carers should consult the treating doctor for professional advice before making any health decisions or embarking upon treatment. In an emergency, call an ambulance (in Australia dial '000').

The resources for families include information on diagnosis and treatment of epilepsy, safety, first aid, lifestyle, coping with epilepsy, and dealing with emotions.

For clinicians, the website provides key information on approach to diagnosis, epilepsy syndromes, medications, safety, issues of driving and pregnancy, and management of first seizure and epilepsy.

Standardised documents for event recording, drug planning, and emergency seizure management for schools, day care and respite centres, are provided.

Latest News

February 26, 2019

New video - Living Well with Epilepsy

We have created the Living Well with epilepsy video for adolescents with epilepsy.
February 3, 2019

New video - First seizure information

The video is for parents/carers of young people who experience a first afebrile seizure.
February 1, 2019

Makayla's Story

At just five years of age Makayla suddenly suffered a fit that lasted 54 minutes. She was rushed to hospital by ambulance.