Children's epilepsy resource for Families

Resource site:

About the Paediatric Epilepsy Network NSW

 

The Paediatric Epilepsy Network New South Wales (PENNSW) was established to formalise the interaction between the many different groups involved in caring for children and adolescents with epilepsy. The mission of the Network and the purpose of the website is to improve the standard of care and quality of life for each child or adolescent living with epilepsy across NSW, Australia. The PENNSW website received funding for its establishment from NSW Child Health Networks and NSW Kids and Families (NSW Ministry of Health). The site does not host or receive funding from advertising. The information available on this website was written following rigorous consultation with key epilepsy personnel and families affected by epilepsy, and in reference to evidence-based literature.

 

The PENNSW website provides information for children and adolescents living with epilepsy and their families, as well as clinicians involved in patient care. Navigation between the family and clinician resources is possible by selecting the appropriate tab at the top right corner of the screen.

 

The information for families is designed to complement, not replace, the relationship between a patient and his/her own physician. Patients and parents/carers should consult the treating doctor for professional advice before making any health decisions or embarking upon treatment. In an emergency, call an ambulance (in Australia dial '000'). The resources for families include information on diagnosis and treatment of epilepsy, safety, first aid, lifestyle, coping with epilepsy, and dealing with emotions.

 

For clinicians, the website provides key information on approach to diagnosis, epilepsy syndromes, medications, safety, issues of driving and pregnancy, and management of first seizure and epilepsy. Standardized documents for event recording, drug planning, and emergency seizure management for schools, day care and respite centres, are provided.

 

 

 

 

Contact us:

If you have an administrative query or comment about the website or the resources it contains, please email:

 

paediatricepilepsynetworkNSW@gmail.com

 

Please note, emails received at the above address are reviewed periodically by site administrative staff. 

No individual medical advice or referrals can be provided via the above address.  

If you have a medical question relating to your own or another person's health, please speak with your treating physician.

 

 This page was first published in March 2012 and last modified in November 2017.

 

Resources for CliniciansResources for Families

Makayla's Story
Living with Epilepsy
Epilepsy Explained