We have created new Genetic information resources for families here. The resources aim to help families better understand this complicated area. Topics covered include: genetic epilepsy; genetic inheritance; genetic testing; what to expect at a genetic appointment; and genetic links and resources. 

We have created new Genetic information resources for Clinicians here.  Topics covered include: Why Genetic testing; Diagnostic Yield; Chromosomal Microarray; Fragile X PCR; First-line Metabolic testing; Exome/Panel; and When to refer to genetics.  

We have created the Living Well with epilepsy video for adolescents with epilepsy. It includes important messages on how to make wise choices and live well with epilepsy.

View the video.

The video is for parents/carers of young people who experience a first afebrile seizure. It covers important safety information and details regarding follow-up care. 

View the video

At just five years of age Makayla suddenly suffered a fit that lasted 54 minutes. She was rushed to hospital by ambulance. She was in the Sydney Children's Hospital, Randwick, for one week and underwent tests that monitored her brain activity to understand the severity of her condition.